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GeneticaLens Team
​
Picture
Louise M. Tiranoff, PhD.
Founder and Managing Director

Louise Tiranoff is a documentary filmmaker with more than 25 years experience. Louise served as producer, cinematographer and principal investigator for the Angelman Project (Phase I and II) a video database on Angelman syndrome, and Autism Spectrum Disorders Risk Alert (Phase I and II) both projects funded by the National Institutes of Health (Institute of Neurological Diseases and Stroke). Under her direction, GeneticaLens developed The SEE system (Symptoms-Surveillance Education and Enhancements), including the website Well Child Lens, that will enable pediatric practitioners and parents to quickly identify the risk alerts of autism.


Louise’s television credits include documentary segments and series, which she photographed and directed including 30 episodes of A Woman Is… a documentary series for NBC/WRC-TV, Washington, D.C. Her film Artists of the Dance won a Cine Golden Eagle and aired on the Arts and Entertainment network (A&E). She was Director of Photography of a two-part documentary special, Investigative Reports: Execution at Midnight produced for A&E. She was nominated for an Emmy for City Kid/Country Kid produced for WCBS-TV in New York. Louise is the founder/co-director of The Fearless Theater Company and has written and directed plays for The Celebration Series performed at Lincoln Center in New York featuring such artists as Benny Golson, Gregory Hines, Wynton Marsalis, Antonia Franceschi of the New York City Ballet, and Itzhak Perlman.

The Angelman project
PRINCIPAL INVESTIGATOR
​

Louise Tiranoff, PhD.
GeneticaLens


COLLABORATING INVESTIGATORS
 
Stephen N. Calculator, Ph.D. Professor and Chair
Dept. of Communication Disorders
University of New Hampshire
 
Jill Clayton-Smith, M.D. Consultant Clinical Geneticist
University Department of Medical Genetics and Regional Genetic Service, Central Manchester Healthcare Trust, Manchester, U.K.
 
Susan C. Ferguson, M.Ed.
Information Specialist, Outreach Coordinator
National Information Center for Children and Youth with Disabilities (NICHCY)
 
Cathy I. Filtz, M.S., Pediatric Physical Therapist
Maryland Infant and Toddlers, Prince George’s County Public Schools
 
Timothy J. Freeman, Ph.D.
Child Clinical Psychologist, Behavior Analyst
 
Jill E. Hendrickson, M.S.,
M.S.S.W., Genetic Counselor
PI: Phase 1, The Angelman Project
Women’s and Infants’ Services / Maternal Fetal Medicine, University Medical Center, Jacksonville, FL
 
H. Terry Hutchison, M.D., Ph.D.
Medical Director, Department of Rehabilitation Services &  Department of Neurology
Valley Children’s Hospital, Fresno, CA
Associate Clinical Professor, University of California San Francisco
 
Joseph Wagstaff, M.D., Ph.D.
Department of Pediatrics and Department of Biochemistry & Molecular Genetics
University of Virginia School  Of Medicine, Charlottesville, VA
 
Charles Williams, M.D.
Associate Professor and
Chief, University of Florida,
College of Medicine,
Division of Genetics
 
CONTRIBUTORS
 
Bernard Dan, M.D., Locum Head
Department of Pediatric Neurology, University of Brussels
 
Steven Alan Katz, M.D.,
Director, Chairman Emergency Dept.
St. Francis Medical Center, Trenton, NJ
Instructor in Surgery (Emergency Medicine), Jefferson Medical College, Philadelphia, PA
 
Theresa Rebhorn. B.S.W.
Senior Writer / Editor
National Information Center for Children and Youth with Disabilities (NICHCY)
 
Leigh Sutherland, Director
NBC/WRC-TV Channel 4 Washington D.C., Meet the Press
 
W. Christopher Taylor, D.D.S.
Specialist in Orthodontics
Charleston, WV
 
Elaine Whidden, M.S.N.
Nurse Practitioner
Gainesville, FL
 
STAFF
Louise Tiranoff
Producer/Videographer
Principal Investigator
 
Anne Molinas
Financial Manager
 
Lance Tukell
Senior Editor/ Technical Supervisor
 
Anita Weber
Videographer / Editor 
 
Carla Ruff
Sound Engineer / Editor
 
Michael Tiranoff
Dan Gabriel
Editor/Associate Producers
 
Katrina Markel
Kerrie Welsh
Associate Producers
 
Catherine Calvert
Associate Producer/
Production Manager 
 
Professor Daniel Harvey &  Pat Neill 
University of California,
San Diego
 
Gregory Pastores, MD
IRB Chair
New York University
Well child lens
We are grateful for the participation of the following institutions, physicians, and other professionals:

University of Connecticut

Deborah Fein, Ph.D.
Developmental Neuropsychologist
Co-Author of the M-Chat

Connecticut Children's Medical Center, Hartford, CT
Thyde M. Dumont-Mathieu, M.D., M.P.H.
Developmental and Behavior Pediatrician,
Assistant Professor, University of Connecticut

Marianne L. Barton, Ph.D.
Associate Clinical Professor,
Director, Psychological Services Clinic,
Co-Author of the M-CHAT

Georgia State University
Diana L. Robins, Ph.D.
Associate Professor of Psychology and Neuroscience
Co-Author of the M-Chat

Seaver Autism Center, Mount Sinai School of Medicine

Jeremy M. Silverman, Ph.D.,
Professor, Department of Psychiatry,
Director of the Mount Sinai Family Studies Research Center

Alexander Kolevzon, M.D.
Associate Professor of Psychiatry and Pediatrics,
Clinical Director

Joseph D. Buxbaum, Ph.D.
Professor of Psychiatry, Neuroscience,
Genetics, and Genomic Sciences

Latha Soorya, Ph.D.
Assistant Professor, Department of Psychiatry,
Chief Psychologist

Christopher Smith, Ph.D.


David Grodberg, Ph.D.
Assistant Professor of Psychiatry

Danielle B. Halpern, Ph.D
Assistant Clinical Professor of Psychiatry

Clinical Research Coordinators

Rebecca Schulman
Yosefa Ehrlich
Lauren Donnelly
Anushree Doshi
Laruen Kryzak

Rachel Lally
Research Assistant
Janelle Kalir

Pediatric Clinic, Mount Sinai School of Medicine

Danielle Laraque, M.D. Chief of General Pediatrics 

Romita Almonte, M.D.
Erika Bauml, M.D.
Annie Bird, M.D.
Kanwaljit Chawla, M.D.
Sarah Combs, M.D.
Sonia Desikan, M.D.
Marissa DiGiovine, M.D.
Rebecca Farnham, M.D.
Joel Forman, M.D.
Maida Galvez, M.D.
Allison Gault, M.D. 
Karen Gluck, M.D. 
Rayna Goldstein, M.D. 
Celine Hamilton, M.D. 
Caitlin Hansen, M.D. 
Illana Harwayne-Gidansky, M.D. 
Sunpreet Kaur, M.D. 
Mary Keough, M.D. 
Orly Klein, M.D. 
Allison Langs-Barlow, M.D. 
Meredith MacGregor, M.D. 
Alefiyah Malban, M.D. 
Mana Mann, M.D.
Amir Miodovnik, M.D.

Eve Oster, M.D.
Leslie Pierce, M.D.
Alexandra Shaw, M.D.
Perry Sheffield, M.D.
Ashley Siems, M.D.
Pamela Singer, M.D.
Rishi Sood, M.D. ​
James Starc, M.D. 
Alexandra Stevens, M.D. 
Haylee Teich, M.D. 
Julie Uhlman, M.D. 
Nita Vangeepuram, M.D. 
Cai Ling Wang, M.D. 
Chana Weiner, M.D. 
Lauren Weintraub, M.D. 
Hilary Wolf, M.D. 
Nana Akyaa, Technician
Patricia Battle, Technician 
Gloria McPherson, Technician 
Mariluz Pichardo, Technician
Ananias Capistrano, Front Desk

Steven and Alexandra Cohen Children's Medical Center of New York
Lake Success, New York
Andrew Adesman, M.D.
Chief, Developmental and Behavior Pediatrics 
And Staff
​
Pediatrics of New York
Erica Landau-Fraenkel, M.D.
Mara R. Saideman, M.D.
​And Staff

Kids First Pediatrics
Damian Forletti, M.D.
Cassandra Kraus, LPN

Debra Reicher, Ph.D.

Director of Psychological and Social Services
The Hagedorn Little Village School
Director of Neurodevelopmental Diagnostic Center
The Hagedorn Little Village School, Jack Joel Center for Special Children
Affiliate Clinical Professor of Psychology
St. John's University, New York

Connor M. Puleo
4th Year Doctoral Student in the Child and Adolescent Anxiety Disorders Clinic (CAADC) of Temple University

Children’s Center for Early Intervention
Brooklyn, New York

Thomas Gelb, Esq. – Executive Director
Rosa C. Martinez, Ph.D., BCBA – Educational Director
Jeremy H. Greenberg, Ph.D., BCBA – ABA Clinical Supervisor
Amy Sislo – Educational Supervisor, Head Teacher
Sandy Pih, MSED, LMSW – Head Teacher
Erin Bulkley – MSED, BCBA – Educational Supervisor
Kim Heinemann, Teacher

Teaching Assistants

Elisa Capers
Nichole Della-Pia
Karen Reyes
Angel Brooks
Jessica Anderson
Huguette Henao
​Meghan Deshais
Shoshana Peterson

Aparna Sinha
Casey Chandler-Alexander
Cassandra Anello
Keniesha Randall
Tanya Monplaisir
​Lina Zhang

Speech Therapists
Khalila Ali
Samantha Schupack
Michelle Sakhaee
Ashley Goszczycki

Natalie Romanchukevich
Jessica Sanchez

Occupational Therapists
Krista Chan
Alice Tsay

Children’s Home Intervention Program, Inc. (CHIP)
Staten Island, New York
Lois F. Bond, MA, SAS
Executive Director
​
Stamatios "Tommy" Gianoumis, MA, BCBA
​Director of ABA Services

Kaliope Gianakis, MA
Program Coordinator 

Debbie Pieri, MS
​ABA Teacher

Clover Patch Early Childhood Services
Glenville, New York
Paula Silliman
Director

Kim Keane
Physical Therapist

Christine Lenahan
Speech Language Pathologist
​
Mary Jo Czarkowski
Special Education Teacher

​Alexandra Couet, MSED
​Program Coordinator

Georgia Stiponias, MS
Program Coordinator 

Elaine Scott, MS
​ABA Teacher

Katie Reilly
​Day Care Teacher

Kathleen D. Favaloro
Teacher

Jessica Moehle
Teaching Assistant

YAI

Dr. Bernadette Flynne
Senior Director for the NYL For Early Learning, New York, NY

Carol Stein Schulman
Assistant Director of Education and Training

Maya Goldstein, LCSW
E.I. Service Coordinator

The William O’Connor Schools, Brooklyn, New York
​
Elise Vetere, PhD ABSNP
Director/Licensed Psychologist
Early Start
Brooklyn, New York

We also give special thanks to:

Judith A. McCarty, PhD.

Jon Gardiner
Clinical Consultant

ABA Therapists
Erin Beatty
Erin Klepp
Christine Bradley
Dana Pinto
Michelle Reynolds
Rosemary Ross
Marie Simms
Karen Storminger
Sabrina Sutton

Marry Anne Liotta, Speech Therapist

Anne-Louise Wissinger, Floor Time Therapist
Lauren Grimaldi
Felicia Pecorelli
Kim Rozzi
​Deirdre Wells

​
Speech Language Pathologists
Robert Gabelman, MS, CCE
Jennifer Gates, MEd, CCP/SLP
Christine Horowitz, MA CCC/SLP
Rea Morris, CCC/SLP
Kim Marino 

Occupational Therapists
Debi Blitz 
Colleen Lafferty

Sue Ann Maloy, RDI Therapist 

Tia Marie Smith
Bob Rozzi
​Leigh Sutherland

​
Music Credits
Heidenroslein
The Dusty Miller
C. 1996 Peter Barnes, Earl Gaddis, Mary Lea and Jacqueline Schwab (BMI).
Published by Earl Gaddis Music (BMI) 
​
Thank you to Participants, Families, and Friends. Observations made by parents or grandparents are critical when a child is first brought in for medical attention. Often it is the family's efforts and persistence that help push forward a possible earlier diagnosis and new research.

Special thanks to all the participants, their families, and friends, who so graciously contributed.

Grant #2R44NS053046-04​
mps I
Co-Principal Investigators
Gregory Pastores, M.D.
Louise Tiranoff, Ph.D.

Produced, Directed, & Photographed by
Louise Tiranoff

Edited by
Carla Ruff
Michael Tiranoff

Additional Editing 
Ralph Favilla
​Sara Vasiliou

Sound Mix
Sara Vasiliou

Sound Recordists
Ralph Favilla
John Gilmartin
Roy Marasigan
Carla Ruff

Production Manager
Deirdre Wells

Financial Manager
Marilyn Bloom

Special Thanks To:

Thomas Klugh
Coordinator, PFT Lab
NYU School of Medicine

Guy Baptiste
Clinical Technologist, PFT Lab
NYU School of Medicine

The National MPS Society
Barbara Wedehase, Executive Director

Joyce Fox, M.D.
Chief, Division of Medical Genetics
Schneider Children's Hospital
Professor of Clinical Pediatrics

Mike Almedia
Principal, Riverside Middle School

Natalie Barnett, PhD
Clinical Trials Coordinator
The NYU School of Medicine, Neurogenetics Unit

Bai-jin Zeng, M.D.
Research Scientist
The NYU School of Medicine, Neurogenetics Unit

 Paola Torres,
Research Scientist
The NYU School of Medicine, Neurogenetics Unit

Also Thanks To:

Michele Ford,
Program Coordinator
The NYU School of Medicine, Neurogenetics Unit


Robert M. Greenstein, M.D.,
Director, Division of Human Genetics
Connecticut Children's Medical Center

Martha D. Delaney
Pre-school Educational Consultant
Ct. Services of the Blind

Kenneth I. Berger, M.D.
Assistant Professor of Medicine & Physiology & Neuroscience
NYU School of Medicine

David M. Rapoport, M.D.
Medical Director of the Sleep Disorders Center
NYU School of Medicine

Ira Rashbaum, M.D.
Clinical Assistant Professor
NYU School of Medicine & The Rusk Institute

Gustavo Charria, M.D.
Pediatric Neurologist
Instructor in Neurology & Pediatrics
NYU School of Medicine

Gregory M. Pastores, M.D.
Associate Professor of Neurology & Pediatrics
Department of Neurology & Pediatrics
Director of the Neurogenetics Lab
NYU School of Medicine

Edwin H. Kolodny, M.D.
Bernard A. & Charlotte Marden Professor of Neurology
Chairmen of the Department of Neurology
NYU School of Medicine

Genzyme

Special thanks to all the subjects and their friends and families who so graciously contributed their time as well as home videos and photographs. Without them, this effort would not be possible. ​
MPS II
Co-Principal Investigators

Gregory Pastores, MD
Louise Tiranoff, PhD


Produced and Directed by
Louise Tiranoff 

Associate Producer, Researcher
Jamie Taratoot

Cinematography
Louise Tiranoff 

Sound
Kerrie Welsh
Christer Gomes

Editing
Christer Gomes
Michael Tiranoff 

Additional Camera
Christine Peng

Sound Mixing and Color Correction
Christer Gomes

Financial Managers
Marilyn Eisele Bloom
Ralph Favilla

Participating Experts:
Gregory Pastores
Sally Rosengren
Jennifer Ibrahim
Christina Flora
 Alfred Grant
Mary-Lynn Y. Chu
Ronald Moskovich
John Pappas
David Rapoport
Swati Sathe
Paola Torres
Bai-Jin Zeng
Rakhil Kanevaskaya
Natasha Imai
Alesandra Helwig
Leslie Worona
Barbara Wojtal
Joseph Tucker
Jayne Donovan
Ellen Moran

Thank you to:
Irma Almonte, NYU
Marissa Ferraris, NYU
Barbara Wedehase MPS Society
Nicole Rojas Shire
Dawn Checrallals
Jason’s Band
Earl Gaddis 

Translations
Shih Pin Hwang
Audrey and Paul
Marta Castro
GAucher's disease
​Neurological Assessment in Gaucher Disease
Gaucher Registry International Collaborative Gaucher Group (ICGG)

Presented and Narrated by 
Edwin Kolodny, MD, FAAN, FACMG

Gregory Pastores, MD
Reviewer

Developed by GeneticaLens

Louise Tiranoff, PhD
Producer/Videographer

Sponsored by
​
Genzyme Corporation

Betsy Bogard, Project Manager, Global Registry Programs
THE HOPE SCENARIOS
"What If?"

Directed by
Louise Tiranoff

Produced by
Lynne McVeigh

Starring

Stephanie Kavasansky as Dr. Jenny Scarlatti
Tommy Ge as Tommy Lee
Epiphany Samuels as Savannah Gabriel
Fiona Hall as Dr. Elizabeth Philips
Kemiah Lyte as Kemiah
Nia Gomez as Nia
Matthew Poltorak as Patrick Murphey
Carter E. Glace as Bob
Bailey Riter as Louis Vargas
Giovanna Drummond as Maya Rodriguez
Maddie Shaw as Maddie
Samantha Myers as Samantha
Beverly Johnson as Herself
Trent Johnson as Himself
Troy Johnson as Himself
Tameka Johnson as Herself
Shira Strongin as Herself

Production Manager
Cole Bannick

Director of Photography
Elena Brosseau

2nd Unit Director of Photography
​Eli Sands

Camera Operators
Katherine Watts Margall
Caroline Ratliff Wang

Gaffer
Ryan Taylor Brideau

Sound Mixer
Peem Teerawanichpol

Boom Operators
Isabel Guarnieri
Elizabeth Rakhilkina
Cha Patra-Yanan

Production Designer
Laine Elliot

Art Assistants
Liz Longo
Maxx Evan

Costume Designer
Hanne Whitfield

Costume Coordinator
Christina Trivigno

Script Supervisor
Hannah Garcia

Production Assistant
Carter E. Glace

Location Supervisor
Zul Atmosudirdjo

Catering Supervisor
Sophie Bennett

Editor & Sound Editor
Eli Sands

Additional Editing
Cole Bannick
Andrew Guidone

Original Score
Eli Sands

"We Are The Fearless Theater Company"
Song Written & Recorded by

Ralph Favilla
Featuring Keyboards by 
Ayako Shirasaki
The Hope Scenarios Web Series

Directed by
Louise Tiranoff

Produced by
Lynne McVeigh

​Featuring
​

Epiphany Samuels           Samantha Myers

with

Faye Ginsburg,
David B. Kriser Professor of Anthropology at New York University

Horacio Kaufmann, MD,
Director of the Dysautonomia Center
at NYU Langone Health


Lucy Norcliffe-Kaufmann, PhD,
Associate Director of the Dysautonomia Center
at NYU Langone Health


Wen K. Ling, PhD.,
Associate Professor of Physical Therapy & Chair of the Department of Physical Therapy at New York University

Ginger Davis,

Health Advocate, Chair of NAACP Brooklyn Branch Health Committee

Gloria Rochester, 
Founder of Queens Sickle Cell Advocacy Network

Cassandra Dobson, PhD.,
Associate Professor at Lehman College

Dorothy Cudjoe,
Epiphany's Friend

Keshi & Amanda
Sam's Friends


Production Manager
Carter E. Glace

Director of Photography
Elena Brosseau

Assistant Camera
Kaylee Scinto

Videographer
Adam DeSantes

Sound Mixer
Amelia Palmer

Editors
Eli Sands
Adam DeSantes

Music
Eli Sands

Additional Music

"An Angel On Its Way"
Written and Performed by
Epiphany Samuels

"L'chi Lach"
Written by Debbie Friedman
Performed by 
Lily Szajnberg-Martinez
and Sonia Sundelson


Catering Supervisor
Sophie Bennett

Board Member
Matthew Poltorak

Consultant
Julia Cass

Accountant
Ralph Favilla
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  • Home
  • About
    • About GeneticaLens
    • Our Team
  • The SeeSystem
  • Projects
    • The Angelman Project
    • Well Child Lens - The Autism Project
    • Lysosomal Storage Diseases
    • The Hope Scenarios
  • Contact